Prayers for Skyla

Skyla's Story

 

Last year December 17th, was when my life changed forever. My mom checked me out early to get my iron checked at my family doctors. They pricked my finger and took some blood and went to go find out my iron. Me and my mom waited for hours, people leaving before us, and we was there when the doctors was closed.....we had no clue what was taking so long or going on. Soon after about 3 hours of waiting the doctor comes in and looks at me and asked "Skyla, how you feeling today? Are you tried?". I answered back saying "I feel great and no, I'm not tried just hungry and ready to go home". He looked at me and started talking about something was not right with me....and said that they needed me up to Missions Children's Hospital fast and into the ICU. I started to get a little nervous. After another hour, me and my rushed home and packed our bags. My mom tried getting me to eat but I was so scared.....and just couldn't eat no more. When we arrived at the hospital, we was rushed straight back to the ICU. About 5 or 6 nurses came into my room while my mom went to go get my stuff down stairs. All the nurses asked me the same thing the doctor did. The nurses tried so hard to get an IV in me. Finally they done it, and told my mom that my vein had collapsed! My nurse for the night looked at me and goes sweetie, you sure your ok? I replied "yes, I'm fine". She looked at my mom and said "Skyla's iron is 2.1 and when someones iron gets down to 1.......well thats the end of their life...". I just laid there trying to understand what was going on. Soon I was given blood....and then another bag, and another, and another and finally a 5th bag. The nurse said I didn't have no blood at all in my blood only maybe a pint and if not that then a half of a pint! I was released after a week, and had to go back there the next day, 2 days before Christmas. They had to preform a bone marrow biopsy  which is where they drill a big LONG needle in your hipBONE. Luckily  I was asleep, but when you wake up you can't walk at all without falling. I got released and went home, spent Christmas with my family. Next I was heading back to find out if I had Leukemia, which I don't. Then they tested me for Fanconi Anemia, smilier to what I have, Diamond Blackfan Anemia.  They tested me for DBA and it came back Positive. DBA is a rare blood disorder, which causes you to have bone marrow failure. This can also cause many many cancers...which I am so close of getting the top one....Leukemia. More on my journey, is that I miss a lot of school for the cancer center and if I get sick, my iron goes at a good point and then drops dangerously low....putting me in the hospital. Plus my body can't fight off virus and things like that. This is why I wear a mask, I think I would rather wear a mask then be in the hospital. 2 treatments for DBA is steroids (Which I have been on for almost a WHOLE year! And steroids DO NOT cure you), the other is blood transfusions, soon I will have to have a port placed in my chest, because I get blood pretty often.  There is NO cure for DBA. DBA is just like CANCER!